Zhongan online and Zhongan news client news “porcelain doll” (osteogenesis imperfecta), “sticky baby” (mucopolysaccharide storage disease), “string puppet man” (multiple sclerosis), “moon angel” (albinism)… Behind these seemingly beautiful names, there are connected with a group of people unfamiliar to the outside world - patients with rare diseases. “China rare disease definition Research Report 2021” first proposed the “China rare disease 2021 edition definition”, that is, “the incidence ra...